Supporting parents’ decision making for baby with Trisomy 18

Wishing everyone a pleasant and safe new year! For our very first post of 2021, we are pleased to share a case presentation by Dr Min Sun Kim from Seoul National University Hospital.

The case centers on the family’s decision-making and preference of care for their baby with Trisomy 18 and esophageal atresia. Please tune in to the case presentation through the link below:


If you have trouble accessing Youtube videos, you can download the Powerpoint Presentation Show to listen to the presentation here (you will need the Powerpoint app on your device).


We encourage everyone to tune in and share your thoughts in the post! Please click here to comment at the bottom of the page.

Teenager with soft tissue sarcoma with multiple adverse drug reactions

Greetings everyone! After a brief hiatus, we are pleased to share another case for discussion.

For this month’s discussion, Dr Grace Ng from Singapore shares a case about her team’s journey with caring for a teenage patient with soft-tissue sarcoma, and the patient’s struggles with multiple adverse drug reactions.

If you have trouble accessing Youtube videos, you can download the Powerpoint Presentation Show to listen to the presentation here.


We encourage everyone to tune in and share your thoughts. Click here to leave a comment at the bottom of the page!

Terminal Discharge of newborn baby boy with antenatally diagnosed gastroschisis

Hello everyone! We hope you are all keeping safe during this period. The Special Interest Group case discussion forum is still accepting case studies; if you wish to submit a case study, please do contact us!

The second case study is once again presented by Dr Grace Ng from HCA Star PALS.

Continue reading

Gut dysmotility in 2-year-old girl with presumed genetic condition

This case was presented by Dr Grace Ng from HCA Hospice Care, Star PALS.

Tap/Click on the title or “Show full post” to read the entire post.

Continue reading

Welcome!

Rules

  1. As this forum is a public space, please do not share personally identifiable information from patient details and notes.
  2. Inappropriate comments will be removed or edited with a note from a moderator.
  3. While the documents are available for download, we ask that visitors do not directly share these documents with others.

Q&A

1) How do I access case presentations?

We use PowerPoint slides for narrated case presentations. Please ensure that your computer, laptop, or mobile device has the PowerPoint app to view the case presentation. You can download the PowerPoint app on your mobile device for free (Android / iOS).

2) How do I read posts and comment on them?

  • While browsing, tap/click on the title, or “Show full post” to read through the entire post.
  • When you want to comment on a particular post, go to the end of that post and tap/click “Reply”.
  • You can also reply to other readers’ comments; tap/click “Reply” that is below that reader’s comments.

3) How often does this blog update?

We post one new case every two months; a summary of readers’ discussions about the case will be posted at the end of two months.

4) How do I prepare a case presentation?


Tap/Click here to go back to the Homepage.

Our very own CPC blog

Hi people! Thank you for wandering into this space. You will not regret dropping in. It is likely to be filled with special people – kind souls fired with the passion to serve children and families in various stages of distress and grief, and sometimes joy and appreciation.

We hope to share stories of palliative care interventions (and lessons learnt) while supporting children and families in different parts of the Asia Pacific region, with a view to learn even more through professional exchanges here. The goal is to become better providers individually, so that even more lives are improved!

Poh Heng
Chair, Asia Pacific Hospice and Palliative Care Network, Children Palliative Care Special Interest Group (what a mouthful!)


Click here to go back to the Homepage.